Discover Yahoo! With Your Friends

Explore news, videos, and much more based on what your friends are reading and watching. Publish your own activity and retain full control.

To get started, first

YOUR FRIENDS' ACTIVITY

    The Week

    Living with a brain-damaged ex-husband

    Can a marriage be big enough, asks Susan Baer, to make room for a former spouse who is mentally impaired?

    ON ITS DESTRUCTIVE path up the East Coast in September 2003, Hurricane Isabel ripped through central Virginia, downing trees and leaving thousands without power for days, including the Meltons. From his office near the Capitol, Robert, a reporter for The Washington Post, was writing story after story about the devastation. He had spent days clearing out his own backyard and was surprised at how tired the work made him.

    He was working at his office on Saturday, Sept. 20, when his chest started to hurt. He thought perhaps he had eaten bad salami for lunch, but since he'd had a heart scare before, he walked across the street to the emergency room at the Medical College of Virginia, now Virginia Commonwealth University Medical Center. He was having a heart attack.

    SEE MORE: Does Yaz birth control cause deadly blood clots?

     

    On Monday, doctors implanted a stent in one of his coronary arteries. Two days later, on his 46th birthday, he was allowed to go home. A day later, the power finally came back on in their Richmond home. Robert and Page were in the kitchen when Robert pulled his wife into his arms and reassured her: "Everything's going to be okay now. We got the power back, and I'm home."

    But the next day, Friday, Sept. 26, at about 4 p.m., the life they had known ended. Page was making dinner. Nell, 18 months at the time, was in a high chair at the dining room table with Hope, who was 3. Robert bent over to scoot the high chair in and suddenly dropped to the floor.

    SEE MORE: Sharing passwords: A dangerous new teen trend?

     

    The children started screaming. Page called 911. Robert was barely breathing — then stopped. Page tried CPR. Neighbors came. Power crews in the area came in and tried to help. Page remembers a big burly man holding her 18-month-old. Still no ambulance. A sheriff's deputy came in and tried to revive Robert.

    "He was gone," Page says.

    SEE MORE: The dating site that pairs singles by what's in their fridges

     

    After three days, Robert woke up. He was talking, mumbling, whispering, but none of it made sense. He didn't know who anyone was. Still, nurses told Page stories of miracles, people who came all the way back. She clung to those.

    Robert spent several weeks at Henrico Doctors, where he had a defibrillator put in, then was transferred to a rehabilitation hospital. He'd had little physical impairment, but his cognitive loss was profound. He had severe language problems, couldn't sit still, was confused and frustrated to the point of violence. And he had no memory — short- or long-term.

    SEE MORE: Are married people 'nearly a minority'?

     

    By January 2004, he had made enough progress to go home, but after about five months at home, the progress slowed. He could speak and read and write, but he couldn't hold onto the meaning behind words. He had little judgment or control over his behavior and was increasingly frustrated. "He didn't remember his former life," says Page, "but he knew it was something more than he had at the time."

    Doctors told Page that Robert would benefit from someplace with regular activities and a set schedule — a routine that was difficult at home with two small children — as well as caregivers to manage his medications. So Robert was moved into Brighton Gardens in Richmond, an assisted-living facility, and later to a similar place called Sunrise.

    SEE MORE: New York's new safe-sex campaign: 'Too raw'?

     

     

    Today, he looks healthy and fit, and walks with confidence. Page makes sure he dresses well, and glasses at the end of his nose still give him a professorial look. But within seconds of meeting him, it's clear his mind is impaired. It's hard to know how much he comprehends, even when he answers a question.

    The most striking thing about Robert is his personality. Once reserved and a bit aloof, Robert today is talkative and exuberant. He seems to spill over with wide-eyed joy and gratitude. He calls everyone "darlin'" or "babe" or "bro.'"

    SEE MORE: Should Plan B be as easy to get as aspirin?

     

    "Mabel, I cannot thank you enough for that toilet tissue," he'd say to the short Colombian woman who cleaned his room at Sunrise.

    PAGE, A JOURNALIST and political speechwriter, had made her peace with her life. She had lost her taste for politics — half the fun had been discussing it with Robert, she says — but she worked full-time as a government-affairs consultant. On the side, she became an advocate for brain-injury and caregiver groups. "I had made up my mind: 'This is what our life is going to be, and I'm okay with that,'" she says.

    SEE MORE: The world's first sex school: An instant guide

     

    She didn't go out much socially, but in June 2008 she attended her 25th college reunion in Charlottesville. At a cocktail party, she reconnected with Allan D. Ivie IV, a University of Virginia classmate she'd known since kindergarten who was now a banker and father of four sons living in St. Louis.

    They had been good friends as kids, co-editors of the high school newspaper. He vowed to contact her the next time he was in Richmond to visit his mother. Six months later, he did. And soon after, with Allan in the midst of a divorce, they began talking regularly. It was nice to have an adult to talk to, Page says, and she began to wrestle with feelings that they could be more than friends. "It had never occurred to me at that point to be in a relationship," she says. "It felt disloyal to Robert."

    SEE MORE: Nevada's Alien Cathouse: A sci-fi brothel for nerds?

     

    Allan realized that the only way their relationship could develop was if it included Robert. As he started falling in love with Page, he said to her: "I see this responsibility that you have, and I want to help you with it. I understand this is a package deal."

    "That's what triggered the relationship," Page says. "He understood that Robert was central to our lives, that we needed to take care of him."

    Page eventually introduced Allan to Robert, and Allan worked to forge his own relationship with Robert, writing him an e-mail every day and taking him to breakfast at IHOP, Robert's favorite, whenever he was in town. Allan felt uneasy at first, guilty about befriending a man with limited cognition while starting up a romance with his wife.

    Page tiptoed into the subject of dating with Robert, telling him that she and Allan were beginning to be more than just friends, and asking if he understood and was comfortable with that. Robert told her it was fine. "He's a really nice guy," Page says he told her.

    In March 2010, Allan and Page and the girls went skiing at the Homestead Resort in southwestern Virginia. Page watched from behind as Allan helped her daughters navigate the slopes, skiing with one girl on either side of him. "It hit me like a thunderbolt," she says. "I'm watching him with these two girls, and I thought, 'Here's an unusual man, and a patient man, and a kind man, and a very loving man' — and I felt my heart just lift."

    They started having whimsical talks about marriage, but merging families seemed too complicated. Allan, now divorced, couldn't leave St. Louis, where he had joint custody of his three youngest sons and was about to become president of Reliance Bank. And Page's support system — her parents, sister, and brother — were all in Richmond.

    And there was Robert. Marriage would require divorce. Page couldn't imagine that. But another thought eased her mind: "I knew if something happened to me, Allan would take care of Robert, and the girls, of course."

    In June, Allan proposed. Page said yes, though she still couldn't wrap her head around how it would work. Eventually, they came up with a plan. Page and the girls would move to St. Louis. And Robert would come with them.

    PAGE SAYS SHE was a nervous wreck on the June 2010 morning when Robert's brother Will brought him to the house. She'd gone over the conversation dozens of times in her head but still couldn't imagine saying the words out loud.

    Finally, she started: "I'll always love you, and we'll always take care of you."

    "I know that," Robert said.

    She took a sip of coffee. "You know that Allan and I have been seeing each other, and we have a relationship and we love each other, and he's asked me to marry him."

    Robert responded immediately: "You should marry him. He's a good guy." Then he asked what would happen to him.

    Page explained that they would all move to St. Louis, where she'd already found a Sunrise facility close to their home. Their family would be the same, she told him, only bigger.

    Page and Robert's divorce was final in early 2011. She wanted to remain Robert's legal guardian, as she had been since his injury, and no one objected. Will signed for Robert.

    On the morning of March 26 last year, Allan and his youngest son, Charles, took Robert to breakfast at IHOP. That evening, Page and Allan married in a small 19th-century chapel at St. Mary's Episcopal Church in Richmond in front of about 100 people. As Allan held Page's hands, he promised to always love her and her daughters. He turned to Hope and Nell, who were their mom's attendants, and smiled. Then he looked back at Page: "And I promise to always help you provide compassionate care for Robert."

    In June of last year, Page and the girls moved into the five-bedroom ranch house she and Allan had bought in the St. Louis suburb of Creve Coeur. They outfitted Robert's room at Sunrise to look exactly like his room in Richmond: same layout, same photos, same bulletin board with "No. 1 Dad" sign.

    EVERYONE SEEMS TO be adapting, but Robert seems to be adapting best of all, Page and Allan both say. He takes part in everything from the walking club to the puzzle group at Sunrise. "I've got the calendar of today's activities, and I have done the whole nine yards," he tells Page one afternoon. "Aren't you proud of me, darlin'?"

    Page still sees him several times a week, taking him out or to the house, bringing him iced tea for his refrigerator or books of word searches. Allan writes him e-mails every day and takes him to breakfast every Wednesday.

    For years after Robert's injury, Page was sustained by the notion that she would see him again after she died, the man who turned her head in the press room and loved poetry and handed her their newborn babies. "We'd be able to talk through all this stuff, and I'd be able to say, 'Well, I hope it worked out okay, that the decisions were the right ones, and that you were happy.'"

    She's comforted that Robert seems content. That's what has made her own happiness possible.

    Friends used to assume that the holidays were the hardest times for her. But it was really the motions of everyday life. Now that's what brings her the greatest joy: making breakfast, setting the table — the long oak table from her dining room in Virginia that now sits in the sunny kitchen. There they all clasp hands to say grace before dinner. The table is big enough to accommodate all of them.

     


     

    ©2012 by The Washington Post. Reprinted with permission.

    View this article on TheWeek.com Get 4 Free Issues of The Week

    Other stories from this topic:

    Like on Facebook - Follow on Twitter - Sign-up for Daily Newsletter

     
    • Our Family Online  •  Philadelphia, Pennsylvania  •  3 mths ago
      I live with and in this exact same situation except I am still with my husband. 2 years into our marriage (we have been married for 9 years) he had routine surgery that set off a chain of events that left him brain damaged and a completely different person.

      Once the most brilliant programmer/marketing genius I had ever met, he was at one point unable to look at a piece of paper on the floor and connect the dots between wanting to bend over and pick it up and actually getting his body to do it. He has gotten quite a bit better in that area, but in many ways, I have a second child to take care of. He walks and talks, but cannot work, needs nurses for meds, sleep care, physical therapy and has trips to the ER frequently. He almost died 2 years ago and our 5 year old son was the one who found him laying at the bottom of the steps (he collapsed and fell). He has narcolepsy and sleep apnea and a blood disorder, spine injuries and other systemic issues all pointing back to a routine surgery gone wrong (no, we haven't sued, it has taken this long to find out the causes for all of these issues). My husband was a 38 year old father, programmer, amazingly innovative, patient man and the best parent a child could want.

      I cry, I have accepted that this is our life and what I signed up for. It is lonely and people don't understand what i go through .. not even my own family. I am up all night making sure he is getting his oxygen and not up walking all over the house (he falls asleep standing up and hits his head on the tile floor and granite counters in the kitchen). I I've accepted that we can't have more kids, that we've lost his income and that I can't be at home with my son as we planned. I work to support us and he has been granted disability so that helps. We lost all of our savings and our home 3 years ago when our Cobra ran out and medical bills became too steep for us.

      I am tired. I have injuries in my back, neck, leg and foot that need surgery from a fall I had last year but I put my medical care last because I spend so much of my time (as if I have any extra time) scheduling his appointments and making sure he gets what he needs so that he doesn't die tomorrow... or next week..... or next month.... It is hard to find doctors, and specialists that care or will look at more than one system at a time,

      Just before we got married, our pastor sat us down and asked us to look at each other in the eye. He said "Imagine if today, on your way out of here, you get in a car crash and the person in front of you is injured. They can no longer use their hands or move their hands or legs on their own. Do you love this person enough to feed them and diaper them and dress them every day for the rest of your life? It can and does happen. If you are not willing, then walk away now, because, it is not love. We both said "of course, yes we would". I didn't expect it to happen so soon...maybe in my 70's or 80's but not in my late 30's..

      I won't tell you it is easy - it is not. I cry, worry, desperately need adults to talk to, I work SOO hard professionally and come home to a dirty house I am expected to take care of. I miss lot of work for appointments, I get no sleep and have to fight the fear of losing my husband every day. Exhausting, but I would NOT leave him.
      • spinning 3 mths ago
        You deserve to mention exhaustion, not these Hollywood types who can't show up for work or check into rehab because of "exhaustion" God bless you and give you strength dear... from another caregiver.
      • Daniel 3 mths ago
        I know how you feel. I am sole caregiver to my disable wife.
      • Mellowdog 3 mths ago
        If there is help, take it. Being a caregiver is, in your words "lonely". You have to take care of yourself if you are going to continue to care for your family because if something happens to you, then what? I wish you strength, fortitude, wisdom and health.
    • dude with opinions  •  Philadelphia, Pennsylvania  •  3 mths ago
      Isn't it one of the main benefits of getting married? Having someone who will be there to the very end when sick?
    • Benjamin  •  3 mths ago
      Here is a situation where people are assuming responsibility for another human when a marriage can no longer work. She could have easily walked away into a new life, but didn't quite. Weird situation, but all are good people.
    • Colin  •  4 mths ago
      I just got some dust or something in my eyes...
      • Telestai 4 mths ago
        That's two of us.
      • Kate 3 mths ago
        make that 3 of us
    • stardog  •  4 mths ago
      That guy must have been some kind of special to have so many people looking out for whats best for him.God bless them all!
      • Irene P 4 mths ago
        Allen also a really great guy, not has he taken on some-one else's children but also helps with her ex husband, a whole lot of love there.
      • RJP 4 mths ago
        What kind of a man would have an affair with a woman whose husband is brain damaged? "Great men" do commit adultery.
      • Olive Level 3 mths ago
        Except his wife, who was lookin out for number one, and "Allen" who is busy spending his money and probably has his hands down the kids pants.
    • Julie  •  Dallas, Texas  •  3 mths ago
      wow, there are so many negative comments about this story...how can any one see this other than what it is...love , devotion, and respect for someone who is no longer mentally there???? I see it as positive reinforcement of human nature, to take care of those you love in the ways that will best help them
      • Kate 3 mths ago
        I don't think they read the story as being exactly what it is ... a testament to how much she loves Robert and still has enough room in her heart to love Allan, also.
      • Jughead 3 mths ago
        Seriously Julie? You see this as love, devotion and respect???
        So did she love Robert when she routinely cheated on him with Alan?
        So she's devoted to Robert by putting him in an institution, washing her hands of him?
        How about how she respected Robert so much that she had her backdoor man take him to eat, flaunting it in front of him daily but the poor guy is too far gone to realize it? I'm learning something new every day it seems. Today's lesson is infidelity is okay if you think you deserve it, regardless of wedding vows. Gotcha
      • A Yahoo! User 3 mths ago
        More like guilt than love.
    • MayaL  •  Treves, Germany  •  3 mths ago
      this article is a shining example of true human compassion. This woman could have ditched her disabled husband....wait isn't there someone in politics who left not one but two wives who were diagnosed with cancer? Instead this woman pressed on through some very heartbreaking and "why me God" moments only to emerge stronger and unite with another person who also experienced marriage difficulties (on a different level yes but still...) and now this situation has turned out, in my opinion, truly blessed...
    • Zygo  •  3 mths ago
      Two really caring people who have formed a supportive family with an unbelievable outreach. Who is to say that this was not ordained by a higher power. As Roy Rogers always said...."may the good lord take a liking to you". He already has.
    • Vixen  •  3 mths ago
      I've seen this happen. It's like being married to a child, after this kind of brain damage. On the other hand... "till death do us part" has a sacred meaning to me. Wow, what a deal.
    • D.  •  3 mths ago
      There's a hell of a lot more patience going on in that family than I'll ever have myself.
    • RichardinMD  •  Baltimore, Maryland  •  4 mths ago
      this woman had a really tough thing to deal with. she is lucky to have found someone that will share her life and her troubles without trying to make her choose between her sense of duty to Robert or a desire to have a "normal" life. I wish them all luck.
    • Kate  •  Carlinville, Illinois  •  3 mths ago
      I think that you are all judging her when you don't have the right ... you can all say what you 'think' you would do and how you would act in the same situation ... but unless you have been in the exact situation you are just being cruel and judging. Until you have walked a mile in her shoes, it is all speculation on your part. I think that she handled it very well ... she made sure that Robert was and would always be taken care of. That sure sounds like love to me. It's not like she divorced him as soon as it happened ... and just plopped his butt in a nursing/constant care facility. She took care of him before she met Allan and continues to take care of him now ... they both do ... what is so wrong about that??
    • dude with opinions  •  Philadelphia, Pennsylvania  •  3 mths ago
      A woman is married to a man. The man becomes disabled. The woman tries. She uses emotional logic to date another man. Divorces her husband. moves family to another state. Moves the disabled to another place away from home. what a love story!
    • Christy  •  Pittsburgh, Pennsylvania  •  4 mths ago
      What a beautiful story. Thank you for sharing it.
    • K  •  3 mths ago
      What a wonderful story.
    • Jughead  •  3 mths ago
      So everyone here who thought that what this woman did was "loving and caring", would you do the same thing to your spouses? Lord help them if so. I mean hell while we're at it why even get divorced, we could all just start dating and doing whatever we want since it's what we think we deserve right? To heck with the vows, we don't recognize them any more.

      I do like seeing both the men and women who disagree with what this woman has done to her husband. Let's me know there's atleast a few people left with good morals and won't abandon their supposed loved ones when it's convenient, or a better oppurtunity arises.

      For those of you asking, I for one would NEVER cheat on, then leave my spouse institutionalized just so I could be happier. That's NOT caring people, that's ridding herself of her perceived burden.
    • Roger B  •  4 mths ago
      A remarkable story. An incredible man, Allan, to realize that Page will always care for her first husband, and his willingness to help her to do that.
      God's blessings to them all.
    • Audrey  •  Lafayette, Louisiana  •  3 mths ago
      I/m sitting up watching tv very early on a sunday morning, when i read this story, it was a beautiful way to start a day with knowing that there are still wonderful,loving people out there. the brain damage husband was wonderful,the wife was awesome, and the new husband was someone i could met in person so that i could tell him that i wish there were alot of other men like him... To the wife you are a beautiful
      person outside and in don't give up... I hope that your children growup to be just like you, your new husband and let's not forget your friend
      your ex-husband. thank you for that heart felt sorry
    • KATIE  •  Garland, Texas  •  3 mths ago
      I don't even know what to think about this story. Her husband was no longer the man she married, and she wanted a relationship that he was not mentally capable of giving her. I'm sure that's tough. On the other hand when you get married it is supposed to be "in sickness and in health." I am glad this particular situation worked out and everybody seems happy. In most cases I'm sure that's not how it works though. I give her credit for not completely abandoning her husband but I imagine I would not be able to do this myself. She must feel some guilt.
    • Arch  •  Climax, Colorado  •  3 mths ago
      there needs to be a mice and men agreement with all married couples - anything happens where you ask me 2+2 and i answer "blueberry pancakes" you tell me to look for the bunnies and BAM!