Here’s how Florida can decrease patient costs for medications
Almost 500,000 Floridians are living with a chronic illness such as lupus, epilepsy, or HIV. Thankfully, many of these chronic conditions can be managed and treated to ensure all Floridians maintain a high quality of life. Unfortunately, the cost of these medications poses an affordability challenge to many in our state and nationwide, but it’s a challenge our state policymakers can fix.
In the 2023 legislative session, Gov. DeSantis and the Florida Legislature worked hard to increase accountability and transparency around pharmacy benefit managers, or PBMs. While this work was necessary and important, we also need to work towards expanding this effort to include patient-centered policies that will reduce out-of-pocket costs for patients in need of these life-saving medications.
As a nurse and advocate for people living with HIV/AIDS, hepatitis, and other chronic diseases, I am deeply concerned about the use of copay accumulator programs. Copay accumulators are management protocols that health insurance companies and PBMs utilize to prohibit copay assistance from counting toward patients’ health insurance deductibles and out-of-pocket maximums while directing those funds to their own bottom lines. Today, nearly 90% of marketplace insurers have these harmful management protocols in place.
To put it simply, insurers and PBMs are double-dipping by collecting the payments made by the patient as well as keeping the payments covered by copay assistance. All financial assistance being applied to the purchase of a patient’s prescription, whether from a manufacturer’s copay card, a nonprofit program, or financial assistance from a relative, needs to be applied to the patient’s deductible or out-of-pocket spending cap.
Shifting expenses to the patient by not counting this financial assistance causes them to abandon their medicine, jeopardizing their health and ultimately impacting their quality of life. Patients must make tough choices between paying for necessities like rent and food or paying for their prescriptions. We see this in practice – over 40% of patients did not fill their prescription when out-of-pocket costs hit $75-$125, and 70% of patients left the pharmacy without their medicine when out-of-pocket costs hit $250.
Thankfully, Florida Sen. Tom Wright and Florida Rep. Lindsay Cross are championing a solution, Senate Bill 228, and House Bill 363. This legislation aims to help increase patient access to their life saving medicines, and work toward improving Floridians' health and overall quality of life by banning copay accumulator practices presently in place by insurers and PBM’s. Florida would be the 20th state to ban copay accumulator policies. A ban on copay accumulator policies in Florida will help insured patients reach their plan deductibles and out-of-pocket maximums fairly, reduce out-of-pocket patient costs at the pharmacy counter, keep patients out of emergency departments and improve overall health outcomes across the state.
The AIDS Institute is proud to lead the Florida All Copays Count Alliance joined by 35+ chronic disease patient advocacy organizations working to ban copay accumulator programs in the state. Collectively, we urge Gov. DeSantis and the Florida Legislature to stand with Floridians by prioritizing patients and co-sponsoring this legislation during the 2024 legislative session.
Donna Sabatino is director of state policy and advocacy at The AIDS Institute, a national nonpartisan, nonprofit organization headquartered in Tampa, Florida. The AIDS Institute is a lead partner of the Florida All Copays Count Coalition.
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This article originally appeared on Tallahassee Democrat: Here’s how Florida can decrease patient costs for medications
